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|Title:||Diagnosis of a severe congenital anomaly: a qualitative analysis of parental decision-making and the implications for healthcare encounters.|
|Authors:||Lotto, Robyn R.|
Smith, Lucy K.
|Publisher:||Wiley Open Access|
|Citation:||Health Expectations, 2018, In Press|
|Abstract:||Most parents-to-be embark on a pregnancy assuming they will have a healthy child but in around 3% of pregnancies a lethal or life-limiting anomaly is present. 1 In the United Kingdom (UK), parents-to-be are offered antenatal screening for 11 congenital anomalies: serious cardiac, anencephaly, spina bifida, renal agenesis, lethal skeletal dysplasia, congenital diaphragmatic hernia, trisomies 13 and 18, cleft lip and gastroschisis through the Fetal Anomaly Screening Programme (FASP). The first nine of these anomalies may be defined as ‘severe’ as they carry a significant morbidity or mortality risk, and depending on a number of factors, parents-to-be may be offered the option to terminate the affected pregnancy. The other anomalies, cleft lip and gastroschisis, benefit from antenatal or postnatal treatment. 2 In England and Wales, around 70% of women terminate pregnancies affected by a FASP anomaly.|
|Embargo on file until:||1-Jan-10000|
|Rights:||Copyright © 2018, Wiley. Deposited with reference to the publisher’s open access archiving policy.|
|Description:||The file associated with this record is under embargo until publication, in accordance with the publisher's self-archiving policy. The full text may be available through the publisher links provided above.|
|Appears in Collections:||Published Articles, Dept. of Health Sciences|
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|HEX D-M themes paper - for LRA deposit.pdf||Post-review (final submitted author manuscript)||232.7 kB||Adobe PDF||View/Open|
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