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dc.contributor.authorKumarakulasingam, P-
dc.contributor.authorMcDermott, H-
dc.contributor.authorPatel, N-
dc.contributor.authorBoutler, L-
dc.contributor.authorTincello, DG-
dc.contributor.authorPeel, D-
dc.contributor.authorMoss, EL-
dc.identifier.citationEur J Cancer Care (Engl), 2019, 28 (2), pp. e12997en
dc.descriptionThe file associated with this record is under embargo until 12 months after publication, in accordance with the publisher's self-archiving policy. The full text may be available through the publisher links provided above.en
dc.description.abstractINTRODUCTION: A shift in focus towards risk stratification and survivorship in early stage endometrial cancer (EC) has led to the replacement of hospital follow-up (HFU) with patient-initiated follow-up (PIFU) schemes. METHODS: A mixed methods study was undertaken prospectively to investigate utility and patient satisfaction with a newly introduced PIFU scheme. RESULTS: Two hundred and twenty-eight women were enrolled onto PIFU in the first 18 months, median age 65 years (range 42-90 years). Twenty-four (10.5%) women were non-British White ethnicity. Forty-five women contacted the Clinical Nurse Specialist (CNS) at least once (19.7%), the primary reason being vaginal bleeding/discharge (42%). Contact was greater in first six months on the scheme compared to the second 6 months, and women who made contact were significantly younger than those who did not (57 years vs. 65 years, p < 0.001). CONCLUSIONS: PIFU appears to be well received by the majority of women. Although many of the CNS contacts were due to physical symptoms, a number were for psychological support or reassurance. Younger women had greater CNS contact indicating that they may benefit from a greater level support. Patient feedback of the PIFU scheme was positive, with many women reporting that it enabled them to have more control over their own health.en
dc.description.sponsorshipUniversity Hospitals of Leicester Gynaecological Gynaecological Cancer Research fund. Grant Number: NA University of Leicester. Grant Number: Medical student bursaryen
dc.rightsCopyright © 2019 John Wiley & Sons Ltd. Deposited with reference to the publisher’s open access archiving policy. (
dc.subjectendometrial canceren
dc.subjectpatient satisfactionen
dc.subjectquality of lifeen
dc.titleAcceptability and utilisation of patient-initiated follow-up for endometrial cancer amongst women from diverse ethnic and social backgrounds: A mixed methods studyen
dc.typeJournal Articleen
dc.type.subtypeJournal Article-
pubs.organisational-group/Organisation/COLLEGE OF LIFE SCIENCESen
pubs.organisational-group/Organisation/COLLEGE OF LIFE SCIENCES/School of Medicineen
pubs.organisational-group/Organisation/COLLEGE OF LIFE SCIENCES/School of Medicine/Cancer Research Centreen
pubs.organisational-group/Organisation/COLLEGE OF LIFE SCIENCES/School of Medicine/Department of Health Sciencesen
pubs.organisational-group/Organisation/COLLEGE OF LIFE SCIENCES/Themesen
pubs.organisational-group/Organisation/COLLEGE OF LIFE SCIENCES/Themes/Microbial Scienceen
pubs.organisational-group/Organisation/COLLEGE OF LIFE SCIENCES/Themes/Molecular & Cellular Bioscienceen
Appears in Collections:Published Articles, Dept. of Health Sciences

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